Adiposis Dolorosa (DD-painful fatty tumors)

The Forum is designed to enable patients and others concerned with lipoma to interact with each other.

Lipomas are benign fatty tumors that occur as bulges under the skin. Since the only proven therapy for lipomas is surgery , collagenase injection represents a potential minimally invasive approach for humans which may be a therapeutic advantage over the current options.
Forum rules
Discussions on virtually any aspect of lipomas are acceptable, however, please abide by the following guidelines.

Blatant commercial solicitations and advertisements will be deleted. Human Lipomas Patient Discussion Forum does not provide or endorse any medical advice.

Please note: The Forum is presented as a service to those affected by this disease. BioSpecifics Technologies can accept no responsibility for the accuracy, nor the content, of the information posted.

Adiposis Dolorosa (DD-painful fatty tumors)

Postby MsMLG » Thu Jan 09, 2014 4:35 pm

Posting on a site like this is all new to me, so bear with me. Thanks.
I am really excited about the news from Bio-Specifics Technologies regarding the treatment of lipomas. My lipomas from Adiposis Dolorosa (DD) are all sizes, some on my arms, legs, face, hands and upper torso, and some internally, pressing on internal organs. I am currently feeling more forming on and around my right knee... have a feeling of ice water running under the surface, then swelling occurring, and now numbness in that area. Apparently, the lipomas will continue to form for whatever reason...? For a number of reasons, I am not a good candidate for surgery on these lumps (or large masses in some areas).
Questions: Is Bio-Specifics Technologies looking to recruit individuals who are willing to be a part of their clinical studies?
Are there any studies being done in the Houston, TX area at this time or will there be in the near future?
I look forward to hearing from anyone that has any information on this specific study on the Treatment of Human Lipomas and knowledge of any recruiting of individuals for clinical trials research.
Thanks very much.
(Note: As I tried to submit this posting, I got a message that there was a word that was offensive in my text. Apparently, it was the second syllable of the actual name of the disease which medical name is Adiposis Dolorosa. This site needs to accept the real name of this disease commonly abbreviated to DD and accept this name of the doctor who treated President Woodrow Wilson and used his own name for the disease.)
Last edited by MsMLG on Wed Jan 29, 2014 1:04 am, edited 1 time in total.
MsMLG
 
Posts: 1
Joined: Thu Jan 09, 2014 3:42 pm

Re: Adiposis Dolorosa lipomas

Postby jlantrip » Thu Jan 23, 2014 7:39 pm

From the response I got in email the trials are taking place on the East coast, but no specifics about that.
jlantrip
 
Posts: 3
Joined: Thu Jan 23, 2014 7:36 pm


Return to The Human Lipoma Discussion Forum

Who is online

Users browsing this forum: No registered users and 1 guest